Mari Pacheco

“You can love someone and still choose to say goodbye to them,” she says now. “You can miss a person every day, and still be glad that they are no longer in your life.”
― Tara Westover, Educated

“As vezes, nosso corpo deveria mostrar mais as coisas que nos machucam, as histórias que mantemos escondidas dentro de nós.”
― Ava Dellaira, Love Letters to the Dead

“Over the years I have developed and employed a variety of such coping mechanisms, mostly focusing around a philosophy I call, “Live Because.”

“Live Because” is in contrast to what I’ve termed “Live Despite,” which is the idea that people can live rich, full lives in spite of their physical or emotional barriers. “Live Because” takes this a step further by suggesting that in many cases, patients can live a more fulfilling life with their illness than they could ever have done without it.

Ehlers-Danlos syndrome has transformed me from a frequently petty and self-absorbed person into the person I am today (still somewhat self-absorbed, but a lot less petty, and with a clearly defined purpose of alleviating whatever suffering I can). I am better because of my illness, and not just in spite of it.

But this process was, and still is, a journey. Chronic illness is nearly always accompanied by depression, and the need to constantly remain one step ahead of my illness has left me fearful and exhausted. I could never go through this alone...

A part of me will always be angry; such is the process of mourning the pieces of oneself that are lost to chronic disease. I have learned to accept the duality of being bitter and at peace; ignorant and enlightened... while still laying a foundation of hope for the possibility that I can still realize my personal dreams and ambitions, even if not in the exact ways I had expected.”
― Michael Bihovsky

“You see, bookshops are dreams built of wood and paper. They are time travel and escape and knowledge and power. They are, simply put, the best of places.”
― Jen Campbell, The Bookshop Book