My rating of this book is mostly due to my opinion (as someone with Tourette's) of its depiction of someone with Tourette Syndrome, and is an effort to address what seems to be the public opinion of this story as representative of a typical case of Tourette's (which I feel it largely is NOT). I'll leave my gripes with the (relatively awful) writing and style of this book out of the discussion - but wow, I could write pages on my opinion of that alone. (Just quickly though - the writing really is pretty terrible, and the fact that the authors attempt to narrate it from the voice of the son is at best awkward and distracting, and at worst entirely creepy: witness phrases such as "Nearing the end of her talk, my mom looks at me tenderly. Her face is glowing. She looks so beautiful I can't begin to describe it." Ew.)
But this is not my primary reason for writing this review - What I *do* want to address is my worry that this book might be seen as representative of a typical case of someone with Tourette Syndrome. It's not, at least from everything I've read, seen, and experienced over the course of my own life. I have Tourette's (and an instance of it edging toward the more intense end of things), and read the book because my neurologist said she'd like to hear my opinion of it. While this particular story may show the struggles of one PARTICULAR family dealing with this PARTICULAR, extremely severe, instance of TS (and, it turns out, a great number of other, often bigger, problems as well), it is only that of one particular case. Some elements of the story rang true for me, but only a very few - and while the boy's case of Tourette's sounds undoubtedly VERY severe, I fear this isn't pointed out in the novel (or at least, in its marketing) to nearly the extent that I would like.
That is to say, this is not, in my opinion, the story of a typical boy and his family struggling to triumph over Tourette's, but rather of a boy and his family to deal with a case of EXTREMELY severe Tourette's - as well as OCD, alcoholism, depression, and many, many other physical, social, and mental problems.
Many people with Tourette's, by the time they reach adulthood, tend to seem rather ambivalent about having dealt with it all their lives - yes, it causes frustration, but it might create small, less-than-tangible benefits as well. Moreover, what I would pin as the more "typical" case of someone with Tourette Syndrome would be much closer to that of one who has accepted TS and the symptoms that accommodate it as part of his/her daily life, for better or for worse. For most people with Tourette's, it seems to be an integral part of life, and little more: they get over it.
While a very few snippets of this book reminded me of my own situation with Tourette's, it was this distinction that really drew the line: the central character of this book only really learns to deal with his symptoms near the very end of the book, when he's nearly an adult - this is his epiphany, this is the breaking point of the novel, this is where it begins to wind down. His "triumph" in this book, it seems, is that he ultimately comes to view his Tourette Syndrome very much like many, many others with Tourette's view their own cases for most of their lives.
This has become a rant - I don't mean to disparage the central character of the book, nor his family. His struggle does seem genuine, and the experiences of the family are often painful to read about. His Tourette's sounds very severe, and I don't know how I would act were my symptoms exactly like his. My point is more to draw a distinction between this one edge case of a person dealing with depression, alcoholism, OCD, and Tourette's, and the many other people simply living (and dealing relatively well) with Tourette Syndrome, as I fear this story may be interpreted.